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Test Price

2,800 AED

✅ Home Collection Available

LONP1 Gene Sequencing for CODAS Syndrome (Genetic Test in UAE | 2800 AED | DHA Licensed Laboratory)

Executive Summary & Core Metrics

  • Accuracy Guarantee: 99.9% Diagnostic Sensitivity via ISO 9001:2015‑accredited next‑generation sequencing and bioinformatics pipeline.
  • Premium Logistics: VIP Mobile Phlebotomy & Temperature‑Controlled Cold‑Chain Home Collection (Available daily from 8 AM to 11 PM).
  • Clinical Guidance: Complimentary post‑test telephonic result interpretation by a DHA‑licensed genetic counsellor.
  • Insurance: Direct billing verification via WhatsApp +971 54 548 8731.

Test Overview & Methodology

This advanced next‑generation sequencing (NGS) test screens the entire coding region of the LONP1 gene, diagnosing autosomal recessive CODAS syndrome (Cerebral, Ocular, Dental, Auricular, Skeletal anomalies). The test is performed on peripheral whole blood using an ISO‑certified NGS platform with ≥ 99.9% analytical sensitivity for single‑nucleotide variants and small insertions/deletions.

Feature Our Test (NGS) Closest Alternative
Technology Full Gene Sequencing (NGS) Single‑variant PCR / panel
Coverage All coding exons ±10 bp splice sites Limited to known hotspot mutations
Turnaround Time 3 – 4 Weeks 4 – 6 Weeks
Clinical Validity ≥ 99.9% sensitivity for pathogenic SNVs/indels May miss novel mutations

Physician Insight & Safety Protocols

“CODAS syndrome embodies a unique constellation of multi‑system anomalies, and LONP1 molecular confirmation is essential for accurate prognosis and familial recurrence risk estimation. I urge every patient to pair this test with formal genetic counselling and clinical correlation, as genotype‑phenotype variability exists.”

— Lina Osama Zaki Quteineh, Consultant Medical Genetics | DHA Registration ID: 9294403

Advisory: Medication & Treatment Continuation

Do not discontinue prescribed medication or alter treatment without consulting your physician.

Exclusion Criteria & Emergency Red Flags

  • Unable to provide informed consent (mandatory genetic counselling session required).
  • Severe coagulopathy or active bleeding that contraindicates venipuncture.
  • Acute febrile illness – postpone collection until 48 hours symptom‑free.
  • ER Warning: If a pathogenic variant is reported and the patient develops new‑onset seizures, encephalopathy, or acute visual/hearing loss, seek immediate paediatric neurology/ophthalmology evaluation.

Patient FAQ & Clinical Guidance

1. What exactly does the LONP1 NGS test detect?

Snippet: This test sequences all coding exons of the LONP1 gene to identify pathogenic single‑nucleotide variants and small insertions/deletions responsible for CODAS syndrome, with ≥ 99.9% analytical sensitivity.

2. Who should consider this test?

Snippet: Ideal candidates include paediatric patients with clinical features of CODAS syndrome, unaffected siblings of a proband, couples planning pregnancy with a family history, and individuals seeking carrier status clarification.

3. What sample is required and how is it collected?

Snippet: A whole blood sample in an EDTA tube (or an FTA card dried blood spot) is collected by our DHA‑licensed phlebotomists during the home visit; no fasting or special preparation is needed. Mobile phlebotomy is available daily from 8 AM to 11 PM.

UAE Regulatory & Data Privacy Adherence

Regulatory Compliance & Data Privacy

This test is performed in strict accordance with:

  • Federal Decree‑Law No. 45 of 2021 on Personal Data Protection (PDPL) – all patient data processed within the UAE.
  • Federal Law No. 2 of 2019 Concerning the Use of Information and Communication Technology in Health Fields – ensuring secure handling of electronic health records.
  • Federal Decree‑Law No. 4 of 2016 on Medical Liability – governing clinical testing safety and patient consent.
  • ISO 9001:2015 Certified (Cert: INT/EGQ/2509DA/3139) – guaranteeing quality‑managed laboratory processes.

Clinical & Logistical Metadata

Test Name LONP1 Gene Sequencing (CODAS Syndrome)
Price (AED) 2,800 AED
Turnaround Time 3 – 4 Weeks
Sample Type / Matrix Whole blood (EDTA) or FTA card dried blood spot
Methodology Used Next‑Generation Sequencing (NGS) – full coding exons ±10 bp splice sites
ICD-10-CM Code Q87.8, Z13.71
LOINC Code 21636-6
DHA Facility License & Lab Address Premises 105, Floor 1, Building 33, Dubai Healthcare City, Dubai, UAE | License: 1143 | DNA Labs UAE

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